Aarefa Johari on Building a Survivor-Led Movement to End FGM/C

In less than one month, the Justice for Girls Convening & Festival will take place in Kenya, bringing together activists, survivors, policymakers, governments, funders, and movement leaders committed to ending female genital mutilation/cutting (FGM/C) and child marriage within a generation. More than a convening, it is a space for bold ideas, shared strategies, and collective action grounded in lived experience and global collaboration at a critical moment for the gender justice movement.

Ahead of the convening, Survivor Expert Leader Aarefa Johari reflects on the movement’s vision, why survivor leadership matters, and what she hopes participants will build together in Kenya and beyond.

About Aarefa Johari: Aarefa Johari is an award-winning journalist, writer, and co-founder of Sahiyo. She has been speaking out about FGM/C in her community since 2012 and has been at the forefront of the movement to end the harmful practice in India. In addition to shaping and co-leading Sahiyo’s transnational work, her grassroots work in India involves community engagement and campaigning, advocacy, and media sensitization about FGM/C.


Building a Movement

More than a decade before Justice for Girls came together, Aarefa was already helping build a movement to end FGM/C in India. She sees joining the initiative not as the beginning of something new, but as the next chapter in work that has been unfolding for years.

“Joining the Justice for Girls movement is an extension on the work I have already been doing for over 13 years at the forefront of the movement to end FGM/C in India. Around 2012, we were just a handful of survivors and allies trying to break the silence about the practice of khatna in the Bohra community by talking about it publicly. Since then, we have been joined by more and more voices, found strength and healing with each other, and formed grassroots organisations. We have engaged with communities, doctors and policy makers, provided safe spaces for survivors, carried out research, and joined regional and global networks of organisations working to end FGM/C. There is a lot we have achieved, but changing social norms is difficult work, and we still have a long way to go.”

As the movement has grown, so have its ambitions, but so have the challenges. For Aarefa, one of the greatest barriers isn’t a lack of commitment or expertise, but a global funding system that has consistently overlooked survivor-led grassroots organizations.

“One of the biggest hurdles we face, of course, is funding, without which our ability to carry out community-based programmes is severely limited. When it comes to women and children’s rights, global funding structures have unfortunately been lopsided for a very long time, with survivor-led grassroots organisations in communities of colour inevitably getting the (very) short end of the stick. This is precisely the problem that the Justice for Girls movement aims to address, and I am happy to be a part of it.”

Reimagining Global Funding

One of the Justice for Girls initiative’s goals is to develop a movement-led global action plan for the next five years. For Aarefa, that plan must go beyond broad commitments and address one of the movement’s biggest structural barriers.

“I hope this plan includes the creation of a joint group of global stakeholders – survivor-experts, organizations, and funders – who work towards a systematic overhaul of our current funding structures. 

If we truly want to end FGM/C in communities around the world, grassroots organizations need to be trusted, fully supported, and funded directly. For this to happen, the racism at the heart of our funding systems needs to be examined with honesty and rooted out.

This plan prioritizes survivor-activists, who are best placed to be effective changemakers in their communities. I therefore hope that it also includes the creation of a fellowship for leadership development among survivors, something that was proposed at a convening of survivor-leaders just last year.”

Centering Survivor Expertise

For Aarefa, survivor leadership isn’t symbolic — it’s essential. She believes those with lived experience are uniquely equipped to lead change within their own communities.

“Survivors have lived experience within their communities, know the complexities and cultural nuances that affect any kind of grassroots work to end FGM/C, and survivor-activists, in particular, are individuals who have already demonstrated their courage and willingness to carry out that grassroots work. 

For far too long, survivors have been treated by iNGOs and high-level global stakeholders largely as victims whose value is limited to the stories of their trauma, rather than as experts who are best placed to lead movements within their communities. The Justice for Girls convening aims to flip that pattern, with the help of allies.

Standing Firm in the Face of Backlash

That work doesn’t happen in isolation. Around the world, advocates are confronting increasingly organized efforts to undermine women’s and girls’ rights. Even so, Aarefa believes the movement has no choice but to keep speaking out.

“In an ideologically and communally polarized world, this is getting increasingly difficult and exhausting. However, we have no option but to keep calling out the people who throw women’s and children’s rights under the bus, try to appropriate our causes for their own motives, and those who actively turn against us. We must continue to stand by our principles and assert our right to fight for women’s rights.”

Healing Is Part of the Work

The Justice for Girls Convening & Festival intentionally makes room not only for advocacy, but also for healing, celebration, music, and storytelling. For Aarefa, these aren’t separate goals— they’re deeply connected.

“First, because there can be no advocacy work without healing. Working towards social change, particularly on issues of gender-based violence, can be exhausting for anyone; survivors have the added burden of their past traumas and triggers to deal with. In order to refill the inner resources needed to carry out advocacy work, taking the time to heal is essential.

Second, survivors are so much more than the trauma we were made to suffer. We are full human beings with careers, passions, desires, and interests, and we belong to communities that are rich in their own culture. When we convene at events like Justice for Girls, we need to embrace the celebration of all of ourselves rather than just the parts of us that are labelled ‘survivor.'”

Investing in Lasting Change

Ending FGM/C, Aarefa argues, requires more than awareness campaigns or policy changes. It requires sustained investment in the grassroots organizations doing the difficult, long-term work of changing social norms.

“There is no single, magic solution to the problem of FGM/C. Laws imposed on an unwilling community have not proved to be effective in most countries, often pushing the practice underground. Movements led mainly by advocates who are not from practicing communities are also regarded with suspicion. 

Helping communities abandon a deeply entrenched social norm requires the sustained, long-term work of education, engagement, difficult conversations, and gradual changing of minds. This work cannot be carried out by grassroots activists who are either unpaid, underpaid, or lacking necessary resources. 

When survivor-led grassroots organizations are backed by the long-term investment it deserves, they can reach out to communities in more geographical areas, experiment with different programmatic approaches, identify the most effective ones, and actually effect change.”

Learning From One Another

One of the aspects of the convening that excites Aarefa most is the opportunity to exchange ideas with advocates from around the world. She hopes to share lessons from Sahiyo’s own work in India while learning from the experiences of others.

“I think we all have so much to learn from each other, and that’s one of the best parts of convening with activists from around the world. In India, the FGM/C-practicing Bohra community is small and very insular, and the fear of excommunication makes it difficult for members to engage with us openly. In this cultural context, our most impactful grassroots programme has been Thaal Pe Charcha, which loosely translates as ‘conversations over food’. We have been doing it since 2017 – creating safe, intimate spaces for small groups of women and men from the community, where we facilitate difficult conversations about FGM/C while we all bond over a traditional Bohra meal. This programme has empowered dozens of community members to take a stand against FGM/C in their own homes, raise awareness, and, in some cases, prevent girls in their families from being cut. 

I would love to share our learnings from this programme with my colleagues at the Justice for Girls convening, and also discuss ways to overcome the challenges we face.”

Looking Beyond Kenya

For Aarefa, the convening isn’t an end point—it’s the beginning of deeper collaboration and long-term accountability.

“I have no doubt that we will take our conversations forward into the coming years by agreeing on a clear message to send out to the world, and by staying connected to hold each other accountable.”

Ultimately, she hopes the convening’s impact extends far beyond the movement to end FGM/C and child marriage.

“I hope that we inspire all human rights movements and funders to value survivor-leaders for everything that they bring to the table, and to ensure that there is systemic change in the way grassroots work is supported.”

Start Planning Your Journey

We look forward to welcoming you to Kenya for this important global convening.

Women in Liberation and Leadership

Women in Liberation & Leadership (WILL) is a survivor-led grassroots movement in The Gambia, driven by women who have endured Female Genital Mutilation and are now leading the fight to end it. Rooted in lived experience, WILL empowers survivors to reclaim agency over their bodies and choices, while mobilising communities to protect girls from FGM, child marriage, and gender-based violence. By building alliances with local institutions, civil society, and international partners, WILL ensures that change is not imposed from outside but grows from within, anchored in survivor leadership and community action to secure justice and dignity for future generations.

Wallace Global Fund

The Wallace Global Fund is a private grantmaking foundation based in Washington, D.C. Founded by Henry A. Wallace, a Vice President to Franklin Roosevelt a progressive leader, the Fund champions people-powered movement building and works to advance democracy, climate action, and racial, economic and gender justice. The Fund has been committed to ending female genital mutilation (FGM) since its inception. The Fund works to break the silence around FGM by directing its resources to survivor-led movements, frontline activists, and national, regional, and global advocacy organizations. The Fund plans to cease operations in December 2026. However, the Fund is developing a new FGM Frontline Funding and Advocacy Initiative. that will extend its longstanding work on FGM beyond the Fund’s closure and provide a catalytic funding mechanism for other donors. The Initiative will provide consistent, flexible funding and support to: (1) frontline organizations working on ending FGM, and (2) a movement support hub, which will direct resources to regional and global FGM intermediaries and organizations, support media and communications outreach and training, and launch a survivor leadership fellowship component. The Initiative will be officially launched at the FGM & Child Marriage Justice for Girls Convening & Festival.

There is No Limit Foundation

There Is No Limit Foundation is a 501(c)(3) international nonprofit organization. It’s a women-led organization committed to advancing dignity, security, and justice through advocacy, maternal health, and economic empowerment. Founded by two Guinean-American sisters, Mariama Camara and Aissata M.B. Camara. Based in New York City for the past 24 years, the foundation was built on the belief that women are the cornerstone of thriving communities. TINLF works to break cycles of poverty and violence by centering women and girls in everything we do.

The Vavengers

The Vavengers is a women and survivor-led movement working to end Female Genital Mutilation and intersecting Violence Against Women and Girls. The campaigning work focuses on improving health, legal and education systems through survivor-led advocacy work, convenings create safe spaces where businesses, civil society, members of communities, government representatives and funders can get together to work towards the shared goal of ending Gender-Based Violence and our connect work builds up community members by connecting them with critical services to make meaningful change in their life while removing vulnerabilities that leave new generations face. The Vavengers builds evidence through reputable policy frameworks and reports, runs survivor-led frontline workshops and works with a local-to-global approach to end FGM and intersecting violence such as forced marriage in our lifetime. The Vavengers also advocates for these forms of violence to be recognised as forms of modern slavery and sexual violence against women and girls, shifting the narrative to survivor-led in media, policy, education and community settings. The Vavengers understand and strongly believe, when women and girls rise, we all thrive.

The U.S. End FGM/C Network

The U.S. End FGM/C Network is a collaborative group of around 200 members, including FGM/C survivors, civil society organizations, foundations, activists, policymakers, researchers, healthcare providers, and others committed to promoting the abandonment of FGM/C in the U.S. and globally.

The Girl Generation

The Girl Generation - Support to the Africa Led Movement to End FGM Programme (TGG-ALM) is implemented by a consortium led by Options Consultancy Services and includes Amref Health Africa, ActionAid, Orchid Project, and Africa Coordination Centre for Abandonment of FGM. It works closely with the Population Council’s Data Hub, the programme’s data and measurement arm. The program continues to support and build the capacity of the existing Africa-led Movement to end FGM at multiple levels and at scale. The programme does not work in isolation but partners with the rest of the end FGM movement globally, including UN agencies.

The Asian-Pacific Resource and Research Centre for Women (ARROW)

The Asian-Pacific Resource and Research Centre for Women is a non-profit women’s NGO with a consultative status with the Economic and Social Council of the United Nations and an observer status with the United Nations Framework Convention on Climate Change. Based in Kuala Lumpur, Malaysia, ARROW has been working since 1993 to champion women and young people’s sexual and reproductive rights. ARROW occupies a strategic niche in the Asia Pacific region and is a Global South-based, feminist, and women-led organisation that focuses on the equality, gender, health, and human rights of women.

Sahiyo

Sahiyo is a U.S.-based 501(c)(3) nonprofit organization dedicated to empowering Asian and other communities to end female genital cutting (FGM/C) through dialogue, education, and collaboration rooted in community involvement. Founded in 2015, Sahiyo centers survivor voices, particularly within South Asian diasporas, and is guided by a commitment to bodily autonomy, consent, and the recognition of FGM/C as a human rights violation. Sahiyo works at the intersection of survivor-centered programming, community education, and systems change, centering the voices and lived experiences of women and girls from communities where FGM/C occurs. Sahiyo’s primary areas of work include survivor-centered healing spaces, community storytelling, intergenerational dialogue, professional education, and cross-sector capacity-building.

Global Platform for Action to End FGM/C

The Global Platform for Action to End FGM/C is a consortium of civil society organizations, champions, survivors, and grassroots representatives united in a singular mission: to support the abandonment and prevention of female genital mutilation/cutting (FGM/C). The core group includes Amref Health Africa, African Women Rights Advocates (AWRA), Coalition on Violence Against Women (COVAW), End FGM/C Africa Network, End FGM Canada Network, End FGM European Network, Equality Now, Orchid Project, Sahiyo, The U.S. End FGM/C Network, There Is No Limit Foundation, Tostan, The Girl Generation, The Asia Network to end FGM/C, and The Inter-African Committee on Traditional Practices.

Girls Not Brides

Girls Not Brides is a global partnership of civil society organisations dedicated to ending child marriage and supporting girls to realise their full rights and potential. Founded in 2011, the partnership brings together more than 1,400 member organisations across over 100 countries, including grassroots groups, national coalitions, international NGOs, research institutions, and advocacy networks. As a collective, Girls Not Brides connects members, fosters collaboration, and strengthens shared efforts to address child marriage in all its forms, recognising it as both a human rights violation and a barrier to sustainable development. The partnership works at local, national, regional, and global levels to drive change through evidence-based advocacy, policy influence, and knowledge generation. By convening diverse actors and centring locally led solutions, Girls Not Brides plays a pivotal role in advancing coordinated, inclusive, and sustainable action to end child marriage and promote gender equality worldwide.Girls Not Brides Kenya is a national partnership of over 135 civil society organisations working at both national and grassroots levels to influence policy and budget decisions that help end child marriage. Established in 2017 as the End Child Marriage Network Kenya, it officially became Girls Not Brides Kenya in 2020. The national partnership aims to amplify the voices of girls across Kenya to realise a society where all girls enjoy their rights and reach their full potential.The partnership operates across 14 regions, coordinated by regional leads, and covers Kenya’s 47 counties.

Orchid Project

Orchid Project is an international NGO, with offices in Nairobi and London, working at the forefront of the global movement to create a world free from FGM/C. Orchid Project was founded in 2011, and our approach remains centred on working with grassroots and geographically wider partners to provide communities with the tools they need to make long-lasting steps towards abandoning cutting for themselves. Our approach is community-centric, but aimed at achieving larger-scale change by catalysing a movement of organisations, youth and survivor activists, politicians, ambassadors and leaders at all levels, in the areas where we are most experienced. We do this by: i) undertaking research, generating evidence and curating knowledge to better equip those working to end FGM/C; ii) supporing and catalysing regional networks; iii) influencing global and regional policies, actions and funding towards ending FGM/C.

Equality Now

Equality Now is a worldwide human rights organisation dedicated to securing the legal and systemic change needed to end discrimination against all women and girls. Since its inception in 1992, it has played a role in reforming 130 discriminatory laws globally, positively impacting the lives of hundreds of millions of women and girls, their communities and nations, both now and for generations to come. Working with partners at national, regional and global levels, Equality Now draws on deep legal expertise and a diverse range of social, political and cultural perspectives to continue to lead the way in steering, shaping and driving the change needed to achieve enduring gender equality, to the benefit of all.

End FGM Canada Network

The End FGM Canada Network is a non-partisan group of survivors, individuals and organizations working to end female genital mutilation/cutting (FGM/C) and support survivors both in Canada and abroad. The Network unites members and stakeholders across Canada to share knowledge and foster collaboration within the field of FGM/ C, with a focus on creating platforms for engagement and offering trauma-informed culturally sensitive tools to enable frontline professionals to address FGM/C in Canadian communities. We also work with our international partners to advance the discourse and human rights battle to end FGM/C worldwide.

End Female Genital Cutting Singapore

End Female Genital Cutting Singapore envisions a world where female genital cutting (FGC), in Singapore and globally, is obsolete. We work to shift paradigms within Muslim communities by promoting medically accurate understandings of harm and recognising the diversity of religious interpretations on FGC. Alongside this, we engage and advocate with healthcare professionals, religious leaders, and policymakers to encourage clear and accountable public positions on the practice. We also educate the wider public, fostering solidarity and meaningful allyship from non-Muslim communities through accessible education, social media engagement, and concrete avenues for action.

Coalition on Violence Against Women (COVAW)

Coalition on Violence Against Women (COVAW) is a national non-profit women’s rights organization that was established in 1995 to respond to the silence of the Kenyan society in addressing Violence Against Women and Girls (VAWG). COVAW pursues an integrated approach focusing on: 1. Advocacy: Supporting evidence-based advocacy towards existence and enforcement of gender progressive norms, policies, laws and institutions. 2. Service delivery: Piloting and implementing innovative and scalable high impact responses to SGBV and other violations and increased access to SRHR solutions. 3. Capacity development: Offering technical support to women, girls, and key actors involved in addressing VAWG and promoting women’s access to rights, services, opportunities and resources. 4. Movement building: Supporting mobilization, organising, empowering of and solidarity with key actors to increase their consciousness and activism on rights and freedoms of women and girls.

African Women's Rights Advocates

African Women’s Rights Advocates (AWRA) is a Pan-African, survivor-centred movement advancing the rights, dignity, and leadership of African women and girls across the continent and the diaspora. As a holistic and intersectional collective of frontline activists, grassroots leaders, and changemakers, AWRA works across borders and generations to dismantle systemic injustices and end violence against women and girls in all its forms. Rooted in a “for us, by us” ethos, the movement centres African women’s voices in global gender justice spaces while challenging colonial power dynamics in funding, policy, and narratives.